Unveiling the impact of neurodevelopmental disabilities on intra family dynamics: A phenomenological exploration.

Abstract

Objective: To explore perceived intrafamily challenges and experiences of having a child with neurodevelopmental disabilities and provide a multifacet impact of having NDD on three familial subsystems: Parental, Spousal and Sibling subsystem. Study Design: Descriptive Exploratory Phenomenological Design was utilized. Setting: The Children’s Hospital & Institute of Child Health, Lahore. Period: September 2022 to January 2023. Methods: Qualitative research method was used in current study. Sample X three families having a child diagnosed with NDD were included. Purposive sampling was used, with the inclusion of all members of the families. Families having only one child with NDD were included in the study. Results: Thematic analysis found two superordinate themes i.e. family role and societal factors, with five major themes i.e. father, mother and sister factors, coping strategies and family support. Conclusion: Families having autism spectrum disorder children had relatively more stress than families of having children with other developmental disabilities. Mothers were reported to face more emotional reactions than fathers. Spirituality and spouse support was considered the most effective coping by mothers. Siblings faced mixed feelings in the presence of a child having NDD. Society needs awareness, acceptance, and sensitivity towards these families. More rehabilitation and treatment services need to be developed in Pakistan.